The initiators of the whole campaign and founding a fund to help find a medication against this wicked disease are the parents of two girls from Banja Luka, the Gajić family.
A large number of prominent Serbian athletes, world aces, sports workers, many who wanted to help the children responded to the charity dinner. The evening was attended by the complete volleyball women’s National team of Serbia, the current champions of Europe, part of the male volleyball selection of Serbia (before their travel to Italy), the leading people of the Volleyball Federation of Serbia, led by president Zoran Gajic and general secretary Ivan Knezevic. Also present were Predrag Danilovic, president of the Basketball Serbian Federation with his wife and daughter, the tennis star Olga Danilovic, basketball player of Serbia Sonja Petrovic, vice president of FSF Savo Milosevic, football trainer b and many other celebrated athletes from Serbia.
“I thank all dear friends and people who responded to my invitation to attend this humanitarian evening and contribute to the erosion of Laforin’s disease, the most severe epilepsy of the human race. Our little, it means a lot to them, yet we can all share common forces. We live in a time where there are a lot of people who need help and help calls come from all sides. Let us always help how we can and thank God and our life that we are in a position to help someone, ” said Boskovic.
* Lafora disease also called Lafora progressive myoclonic epilepsy or MELF is a fatal autosomal recessive genetic disorder characterized by the presence of inclusion bodies, known as Lafora bodies, within the cytoplasm of the cells in the heart, liver, muscle, and skin. Lafora disease is also a neurodegenerative disease that causes impairment in the development of cerebral cortical neurons and it is a glycogen metabolism disorder. Most patients with this disease do not live past the age of twenty-five, and death within ten years of symptoms is usually inevitable. At present, there is no cure for this disease but there are ways to deal with symptoms through treatments and medications. (from Wikipedia).
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